Where have you been and What have you been doing.

It has been a while since my last post. Our computer crashed, wow you don't realize how much you miss having your computer. Plus we have all been taking turns on being sick.

James has had this horrible, nasty cough (cold) since last Wednesday. Which of course has caused little to no eating and at the beginning, vomiting. The vomiting has now stopped and he is slowly very slowly starting to eat again. Thankfully, we have the feeding tube, all though I had to cut that back some while the vomiting was occurring. It seemed pointless to give him it all and have him throw it up or make him throw it up. So of course his weight has dropped, it does not take long for him to loose, as of last night he is down to 22.65lbs. Not as bad as we thought it would be, but just last month we were almost 24Lbs. UGHHHH!

I took him in for a chest x-ray, because at first we thought we may have some bigger issues on our hands, because to us it seemed like his cough, choking and vomiting was due to his feeds, (aspiration) but thankfully the x-ray was clear. Then the nose started running and you could tell it was a cold. Oh well peace of mind knowing the x-ray was clear. However our GI nurse did mention that when children with reflux get sick it can aggravate there already bad reflux and make it worse, seeing how I think we had his pretty well controlled before, I agree.

Plus at our last GI appointment, since James was doing so well they decided to change some things, never again will I do what they say, unless we are a 100 percent sure he is ready, (parents know best) nor will we due 2 things (changes at the same time). Such as increasing his volume of feeds and decreasing a medication (reglan). All though we are anxious to get him off his Reglan, If you do it by itself so you know if he his able to tolerate it. But, increasing his amount by 150MLS was to much he started throwing up the increased amount, or was it the weening of the Reglan, see what I mean. We are pretty sure it was the increased amount. He went from 750MLS to 900MLS. Why would they do this when he was averaging almost a pound a month. The increase in volume not only caused him to vomit but he of course did not want to eat. So again we had 5 steps forward and now 3 steps back, such is the roller coaster life with a preemie. But we will eventually get back on track it just is slow, and thats OK, with a preemir everything is done slowly and in it's own time...

I think of our issues, which is eating and gaining weight, (the biggest of our issues anyway) which initself is huge, I have a child that does not enjoy food or eating, who gags and can make himself throw up just at the sight of food or even gag at the mention of food. But then I read about other families and there struggles and ours seems so minor. I guess it helps put me back into place. Not to say I pray on other peoples mis fortunes, but it just centers me and let's me know how blessed we are to have had a 25 weeker and all in all is doing very well. In respect to what could have been. With that being said.....

Please if you would add my blogging friend Shannon and her little man Ashton to your prayer list, I would refer you to her site but it is a private one. They live in Canada and have been in the hospital for well over a month and though have had some success they are still struggling with some pretty big issues.

Hope my readers are doing well and till next time, Peace.
Tracy