Tonight we might go to boo at the zoo and have James dress up in is Halloween costume, he is going to be spider man and he loves Halloween all the scary stuff make shim laugh in fact we decorated outside a bit and he even has been in his way saying Halloween, and I have been working on the trick or treat, of course I have to be silly and say trick or treat smell my feet give me something good to eat every time I say it and he just howls with laughter which makes you do it even more, because his laugh is so contagious.
Monday is our big day, feeding tube day. All though I am a bundle of nerves, as is my husband we are ready. I have finally got a phenomenal feeding therapist and we are switching OT's the beginning of November who is phenomenal, as well I think the feeding tube will enable us to be more relaxed with James' feeding issues and hopefully give us the time we need to conquer them. We will no longer have to stress as much because he did not eat enough and is not gaining weight. I can not wait for the weight to gain!!!! With that being said I of course am teary eyed. I have spoken with a lot of mom's who's children are now off the feeding tube but were one day in my shoes and have nothing but positive stories with great outcome for there children . So that helps ease the tension of the decision. But I really think this is the best thing for James and us at this time in our life's. So wish us well and I will post after surgery.
I will leave you with some photos to enjoy, just ignore me I am the most un photo genic person on the planet.
Thanks for visiting and all your support. I recently did a magazine article for parents in the NICU life and one of my comments mentioned was blogging and how mush support you can get and how therapeutic it can be, so thanks for that.
Tracy
1 comment:
The new pics are great!
I will be keeping you all in my thoughts on Monday during the surgery. I hope it all goes well without any glitches. But most of all I hope baby James comes out of this with a huge weight gain ahead of him.
He is such a special little boy to be so loved by you.
Good luck with everything!! You are all in my thoughts.
Post a Comment