Sunday, July 15, 2007

Just some miscellaneous pictures

Well it seems I have figured out how to down load pictures from my digital.

My husband plays guitar so James has really taken to playing on his. He has an acoustic and electric kids guitar and puts on quite the show. He also plays/BANGS on his drums and symbols like a pro, and then stands up throws his drum sticks to the "crowd" throws his arms up tries to say TA DA and bows, which of course I showed him how to do the bowing that is. He is cheap entertainment. He cracks us and our friends up every time.

I guess my husband is on to something if we start him early enough you never know maybe a rock star, lets hope his instrument of choice will not be the drums!!!PLEASE



James' birthday cake made by my sister-in-law
I chose Jay Jay the Jet plane because James
really is into this character but I could not buy
anything but on EBay. So she did the cake because
that to I could not order. But she did magnificent!
A bakery could not have done as well. And the filling
was key lime, Yummy! Thanks Maria. James eating cake
is on our video camera. I have no clue how to get that on here!






James being a tiger on his tiger!



James and daddy playing guitar
James' first lesson
James on his quad





James on his drums from his birthday
James eating snack and watching T.V.


More T.V. Uh Oh does he watch to much T.V.
However they are mostly educational notice
the pointing!


Another guitar lesson
More T.V. (At least he is into music too!)




James just being cute, he also got in trouble
for getting up on that bench.


My favorite thing to do, sleep and cuddle
my baby.

Friday, July 13, 2007

The struggles of preemie motherhood

Well where to begin! James has been declining so rapidly in the eating world. He has not had much in the solid food category for about a week. When I put food in front of him he gags. I know I am no chef but there is more to it then bad cooking.

I am just so upset, We go to our GI 7/23 who keeps stating the possible need for a feeding tube. But until they get his reflux and such under control I do not feel that is the answer.

They have tested him for every disease and syndrome known to man kind. As well as a bone age study and so far luckily everything has returned negative. I just don't know what to do. They have him on 3 different medicines, Nexium for reflux, Reglan to speed up the stomach mobility and Periactin to increase his appetite (which I see not helping). Our baby's our supposed to pure and innocent and we have to pump them with all of these chemicals (medicines)

James is such a wonderful little boy always happy, and I am so fortunate at how well and how far he has come. So much so that if we did not have this eating issues and weight gain you probably would never no that he was born at 25 weeks.

We also went to the eye doctor again and of course his eyes are still the same, he has Amblyopia and Anisometropia due to stage 3 ROP. He of course does not wear his glasses which is a another struggle everyday, I am not as strict on this although I need to be, but I feel I have to pick my battles, medicines are a challenge now once I catch him I pray that he keeps it down.

Any ways thanks for listening and I hope I did not bore you, this is however great therapy. I know I am not the best writer, But hopefully you stay tuned and give me all the advice you can.

Tuesday, July 10, 2007

NEUROLOGY OR BUST!

So yesterday we went to our 6 month Neurology visit. I dislike these appointments because of there charts and expectations. Just when you think your 25 week preemie is making such strides they rain on your parade. Here is how some of it went.

James' weight = a 9 month old (20lbs. 1.5 oz)
His height measures in @ a 12 month old (33 inches)
His Alberta infant motor scale since his language skills are still average of a10 month old puts him @ a level of a 19 months old but in actuality his fine and gross motor skills are @ a 21 1/2 month old.

See what I mean throw away the charts, my son was born @ 25 weeks was not expected to survive let alone weighed 1lb 6oz. I think he has come a long way. Then they always contradict themselves by saying that each child develops in there own way!

Any way I am done ranting, thanks for listening.

On the happier side of life, James had a wonderful birthday party, thanks to all my family and friends for sharing this day with us. He received so many toys I think we will have to by the house next door and James can just stay here. He is taking over, my living room now looks like a few isles from toys r us.

Wednesday, July 4, 2007

Happy 4th of July

Well today was good. James ate pretty well for him. We had to put him on Miralax to help with some recent constipation issues he just started having.

I think it may be due to the new drinks he is now on they are very high in calories and fat plus protein. And of course he does not eat enough fruits or vegetables to help him out.

I have placed a call to our GI to see about maybe giving him some fiber, like Metamucil or similar. Let me know of anything if you struggle with this as well.

We spent the 4th with my brother-in -law and his family. We went swimming and had a barbecue. We live in Arizona so it was a hot one today for sure 116 degrees no kidding! But our winters are worth the heat. Tracy

Sunday, July 1, 2007

FOOTBALL

James caught a football today for the very first time. He was palying with daddy and caught it about three times with no FUMBLES!!!! Yeah coordination not an issue.

Saturday, June 30, 2007

James Turning TWO 7/7/07


I am still trying to figure this out, HELP!!!!

Well here I am again, not knowing what I am doing. I have just created 2 blog sites. I am so confused. Now if I could only figure out how to let people know about it and can come back to post and check comments.

James is great, turning 2 in 7 days, I can not believe this at all. A true miracle/blessing. Back in the NICU days you never thought about this you just lived for that day never thinking of yesterday or tomorrow. Well at least for me that is how it was. I am going to stop here and try to figure this out some more. I hope to be back soon. Thanks Tracy