The struggles of preemie motherhood

Well where to begin! James has been declining so rapidly in the eating world. He has not had much in the solid food category for about a week. When I put food in front of him he gags. I know I am no chef but there is more to it then bad cooking.

I am just so upset, We go to our GI 7/23 who keeps stating the possible need for a feeding tube. But until they get his reflux and such under control I do not feel that is the answer.

They have tested him for every disease and syndrome known to man kind. As well as a bone age study and so far luckily everything has returned negative. I just don't know what to do. They have him on 3 different medicines, Nexium for reflux, Reglan to speed up the stomach mobility and Periactin to increase his appetite (which I see not helping). Our baby's our supposed to pure and innocent and we have to pump them with all of these chemicals (medicines)

James is such a wonderful little boy always happy, and I am so fortunate at how well and how far he has come. So much so that if we did not have this eating issues and weight gain you probably would never no that he was born at 25 weeks.

We also went to the eye doctor again and of course his eyes are still the same, he has Amblyopia and Anisometropia due to stage 3 ROP. He of course does not wear his glasses which is a another struggle everyday, I am not as strict on this although I need to be, but I feel I have to pick my battles, medicines are a challenge now once I catch him I pray that he keeps it down.

Any ways thanks for listening and I hope I did not bore you, this is however great therapy. I know I am not the best writer, But hopefully you stay tuned and give me all the advice you can.